#2025-596Law Establishing a National Cancer Registry
AI-generated summary for informational purposes only. Not legal advice. See the original source for the authoritative text.
The law modifies public health code to create a national cancer registry responsible for collecting and centralizing population data related to cancer epidemiology and care. This registry aims to improve prevention, screening, diagnosis, and patient management for cancer. It is managed by the National Cancer Institute, which processes strictly necessary personal data for research and public health purposes.
AI-generated summary. May contain errors. Refer to official sources for legal decisions.
Key Changes
- Modification of article L. 1415-2 to include the national cancer registry and user representatives.
- Inclusion of the term 'labeling' in the designation process.
- Establishment of the national cancer registry under article L. 1415-2-1 to centralize cancer-related data.
Obligations
What this law requires
The National Cancer Institute (Institut national du cancer) must act as the data controller for the National Cancer Registry and be responsible for data processing (responsable du traitement des données)
The National Cancer Institute must centralize population data relating to cancer epidemiology and care within the National Cancer Registry
The National Cancer Institute must collect and process only strictly necessary personal data (données à caractère personnel strictement nécessaires) to accomplish its missions
The National Cancer Institute must make collected data available to public and private organizations for cancer research, studies, and evaluations
The National Cancer Institute must make collected data available to the National Public Health Agency (Agence nationale de santé publique) for fulfilling its missions