Health

CDC/NCHS Proposed Information Collection: Research Data Center Data Security Forms for Access to Confidential Data

🇺🇸United States··Notice·Low Impact·View source ↗

AI-generated summary for informational purposes only. Not legal advice. See the original source for the authoritative text.

🇬🇧 English

The Centers for Disease Control and Prevention (CDC), through its National Center for Health Statistics (NCHS), has published a notice in compliance with the Paperwork Reduction Act of 1995 seeking public comment on a continuing information collection program. The program involves data security forms required for researchers seeking access to restricted-use microdata held by NCHS. The purpose of the data collection is to fulfill NCHS's legal obligations around data security and confidentiality when granting access to sensitive, restricted-use datasets used for evidence-building research. Applicants must complete security forms and adhere to corresponding security protocols before being granted access to this data. NCHS operates Research Data Centers (RDCs) that provide controlled access to confidential health microdata. The security forms are a gatekeeping mechanism to ensure that only vetted individuals and organizations can access this sensitive public health data, and that appropriate safeguards are in place to prevent unauthorized disclosure. The public comment period allows individuals, researchers, organizations, and federal agencies to provide feedback on the burden, utility, and design of these data security forms. Comments will inform whether the collection is approved, modified, or discontinued by the Office of Management and Budget (OMB).

AI-generated summary. May contain errors. Refer to official sources for legal decisions.

Key Changes

  • NCHS is continuing (not new) its information collection of data security forms required for access to restricted-use microdata at Research Data Centers
  • Public comment period opened as of April 1, 2026, in compliance with the Paperwork Reduction Act of 1995
  • Forms apply specifically to researchers seeking access to confidential microdata for evidence-building purposes

+ 3 more changes with Pro

Obligations

What this law requires

high

Researchers and applicants must complete NCHS data security forms before being granted access to restricted-use microdata

Researchers and organizations seeking access to NCHS restricted-use data
operational
high

Applicants must adhere to corresponding security protocols established by NCHS as a condition of data access

Researchers and organizations granted access to NCHS Research Data Centers
operational
high

NCHS must maintain controls on confidentiality and privacy in accordance with legal requirements when providing access to restricted-use microdata

National Center for Health Statistics (NCHS)
operational
high

NCHS must use data security forms as a gatekeeping mechanism to ensure only vetted individuals and organizations can access sensitive public health data

National Center for Health Statistics (NCHS)
operational
medium

CDC/NCHS must collect and consider public comments on the data security forms collection program as required by the Paperwork Reduction Act of 1995

Centers for Disease Control and Prevention (CDC) and National Center for Health Statistics (NCHS)
reporting

Affected Parties

Academic and independent researchers seeking access to NCHS restricted-use microdataResearch institutions and universities with active or pending RDC access agreements+3 more…

Tags

data security,public health data,NCHS